Dr. Ron E Henderson
Searching For a Diagnosis

Dr. Henderson’s story has a unique twist. Not only does he suffer from Myasthenia Gravis (MG), but he is also a physician. He negotiated the healthcare system as a patient, and he became personally active in raising awareness with doctors to help diagnose his disease. He offers his 12-step plan to help sufferers “take ownership” and manage their disease.

Early Symptoms
For almost 30 years Dr. Henderson was a practicing physician. For over 25 years he specialized in obstetrics and gynecology. In 1994 he retired because he was too weak to continue. He was mysteriously losing strength in his muscles and losing overall stamina. Mysterious, because for his whole life he had enjoyed a high level of energy and stamina at his disposal. After experiencing difficulties with other symptoms such as weakness in his neck muscles and trouble chewing, he went through a battery of tests concluding that he did have MG.

Getting Familiar with Myasthenia Gravis
Once his diagnosis was confirmed, Dr. Henderson was anxious to learn as much as possible about MG. He wanted to be an expert on his disease. Some of the things he learned early on is that MG is rare and very difficult to diagnose. It is not unusual for patients to have a delay of a year or two before getting a diagnosis. The complexity of the disease and the varied body parts that it attacks as well as the lack of in-depth education by doctors on the disease all contribute to this problem. The most important thing the Doctor learned is that MG is a chronic, incurable, autoimmune disease which can possibly go into remission for an indefinite period of time.

Confronting Reality
After a conservative course of treatment with medication it became apparent that a stronger type of treatment was necessary as well as an adjustment to his life-style. And he had to accept the side effects of this stronger immunosuppressant therapy because he knew that in the long run it was going to help him get better and help him manage this disease. Eventually this course of treatment was successful, and Dr. Henderson was able to regain his strength and get back to many of the activities he was forced to give up.

Taking Care of His Health

Prior to getting MG, Dr. Henderson had a health-maintenance regimen that kept him healthy. He has added this health regimen to his MG regimen and the result is a style of healthy living that helps prevent his MG from being worse than it is. His health regimen is:
1. Take medicines faithfully.
2. Be careful not to be exposed to infections.
3. Cooperate and interact with physicians to manage your healthcare.
4. Get your rest.

Staying Positive
Dr. Henderson has come to grips with the fact that he has a chronic, incurable disease. He has learned to ride with it and continue doing as much as he can in spite of it. It is his challenge to manage the disease. And he does so with an incredibly positive attitude. He likes to say that “it’s not so much what happens in your life; but what you do with what happens in your life.” And what he has done reaches far and wide – he has authored a book about his experience with MG (“Attacking Myasthenia Gravis”), started a foundation for autoimmune diseases and created a website for the foundation that increases awareness of these diseases and helps raise funds for research. He also speaks to MG and autoimmune groups across the country. It is through these extraordinary efforts that Dr. Henderson has touched the lives of so many and will touch many more in the future.

"A Key in the Battle Against Autoimmune Diseases"
Dr. Ronald E. Henderson, M.D .

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